A spinal cord injury dramatically alters everything about your existence. Whether and how you work, leisure activities, your ability to hold your child, your relationships, your body image, and your fundamental sense of self may all change. Appropriate mental care after a spinal cord injury is vital for helping you manage your rapidly changing life.
A spinal cord injury affects virtually every system of your body, and every area of your life. You will have to rethink how you go about even the most mundane activities -- using the bathroom, traveling to and from work, eating dinner with your family, using the phone, using the computer, and so much more.
Any time your life changes, your mental health can suffer. But when you lose the capabilities you once took for granted, things can feel particularly overwhelming. It’s no wonder that so many people with spinal cord injuries experience mental health difficulties. One study found that spinal cord injuries doubled the risk of mental health problems, with 48.5 percent of spinal cord injury survivors experiencing depression, 37 percent facing anxiety, 8.4 percent experiencing post-traumatic stress disorder (PTSD), and a quarter experiencing clinically significant levels of anxiety.
Spinal cord injuries frequently trigger chronic pain, which is associated with steadily worsening mental health. Many SCI survivors also find that people react differently to them. Wait staff may talk to their spouses or children instead of them. Doctors may refuse to answer their questions, and random strangers may stare, or assume that using a wheelchair is a signal of incompetence. These experiences can steadily erode self-esteem and identity, worsening mental health.
In a world that still stigmatizes mental health conditions, many spinal cord injury survivors are reluctant to admit they need mental health care. This reluctance can be exacerbated by a sense of reduced efficacy. A spinal cord injury survivor who needs 24/7 care may be especially hesitant to seek help.
But mental health concerns aren’t all in your head. Ignoring your pain won’t make it go away, and the presence of psychological suffering does not mean you are weak. Biological changes in your brain trigger mental illness, which means you can’t just think your way out of suffering. Treatment helps you get back on track.
Perhaps even more important thing to note is the fact that mental health can affect your physical health. Consider the following:
Many SCI survivors don’t seek mental health care until they already have symptoms. But treating symptoms once they appear is much more difficult than proactively taking steps to prevent symptoms in the first place. Moreover, because the majority of SCI survivors experience some form of mental health issue after their injury, and almost all experience difficulties with adjustment, high-quality mental health care is one of the best gifts you can give yourself.
Many SCI survivors mistakenly believe that mental care after SCI means taking drugs, but there are myriad options for care. Proven treatment options for SCI-related depression and other mental health issues include:
Many people aren’t sure where to start when they realize they need mental health care. At minimum, you need to talk to a doctor about your treatment options. You should also see a therapist, since virtually every other treatment works better when combined with therapy. A competent, resourceful provider who specializes in SCI is your best ally. To find your provider, try asking your SCI treatment team for a referral, consulting with other SCI survivors, or asking your occupational or physical therapists whom they recommend.
Don’t shy away from asking your chosen therapist plenty of questions. Feeling comfortable with your provider is key to success, and not every therapist is a good match for every patient.
A few years ago, getting mental health coverage was difficult. Federal laws now require almost all insurance carriers to cover mental health conditions at the same level they cover physical health conditions. You also cannot be denied care because of a pre-existing mental health condition.
You might have to choose an in-network provider or get a referral from your primary care provider. But once you do, your treatment should be covered. Even if you have a high deductible, the costs of treating other SCI symptoms mean you may quickly reach this deductible, ensuring your care is covered.
Spinal cord injuries are traumatic for patients and their families. They cause disruptive changes to every aspect of your life and there is a lot of new information to navigate and understand. Our experts have collected everything in one place to help you learn more about your injury, locate doctors and treatment centers, find financial support, and get assistance navigating your next move.