---
title: What Doctors Don’t Tell You But Should After an Injury
description: Everyone assumes their doctor will tell them everything they need to know after a spinal cord injury, but sadly this is not the case. From the ER doctor to your rehabilitation doctor, all the doctors you encounter after A spinal cord injury will tell you very important things, but it is impossible for them to tell you everything.
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---

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# What Doctors Don’t Tell You But Should After an Injury

 Author: [Spinal Cord Team](https://www.spinalcord.com/meet-our-authors)

 Publish Date: February 21, 2022

Everyone assumes their doctor will tell them everything they need to know after a spinal cord injury, but sadly this is not the case. From the ER doctor to your rehabilitation doctor, all the doctors you encounter after A spinal cord injury will tell you very important things, but it is impossible for them to tell you everything.

 

Mainly this stems from them not having a spinal cord injury themselves. A doctor can go to school for spinal cord injury medicine and have 20 years of experience, but nothing replaces living with a spinal cord injury. Here is a list of tips from people who have lived with a spinal cord injury for decades on what they wish their doctors would've told them after their injuries.

 

## **Contraction Risk**

 

One of the first things your doctor will tell you is to do a range of motion on a regular basis. While doctors will tell you to do a range of motion to keep your legs limber, they won't tell you what you should really know — that you are at a high risk of contractions if you fail to do your range of motion regularly (2x a day).

 

Even if you can move your arms, for example, those with C5-6 quadriplegia, it is important to do a range of motion in your arms as well since there is less extension due to the triceps being paralyzed. You always want your limbs to have a full range of motion.

 

Contractions are very painful and occur when muscles bind up and refuse to budge. Contractions can be fixed, but only via surgery, and the surgery is not always successful. It can take several years, even up to 20 years post-injury, but many people get contractions in their arms and legs due to not doing enough range of motion.

 

## **Heart Health**

 

Oftentimes patients and doctors are so concerned about functional return and living independently after a spinal cord injury that health risks like heart health can be overlooked. Not being able to stand or walk for several years can have a significant effect on your heart and doctors will rarely discuss this with you when you are first injured. Even if you are young, you can quickly run the risk of heart disease. "Sitting disease" is a real thing.

 

To help, you can do a lot by exercising on a regular basis, ie, short cardio sessions that get your heart rate up. Many physical therapists recommend people with spinal cord injuries do at least 20 minutes of cardio, 3 to 4 times a week. It doesn't require a significant amount of exercise to make an impact on your heart health, even if you sit often.

 

## **Bone Health**

 

Doctors will tell you that you have a higher risk of osteoporosis due to no longer walking/standing, but they fail to tell you important health maintenance suggestions for bone health, like getting a Dexascan each year. This scan can detect osteoporosis. Or they will forget to tell you about infusion drugs, taken annually, that can have a huge impact on bone strength.  

 

Doctors will recommend you use a standing frame or standing wheelchair to help, but these devices, while great, need to be used for several hours a day in order to have an impact on the prevention of osteoporosis.

 

## **Mental Health**

 

Everyone automatically sees a psychologist after sustaining a spinal cord injury, but doctors will rarely mention how depression and anxiety are common in the spinal cord injury population, and that you are at risk of developing these conditions at some point (up to 80% risk in recent studies). 

 

Mental health however is an issue that more and more people care about. The good news as well is that many mental health conditions can be treated with medication or therapy. Doctors like to tell you that you'll find a new place in your life and that you will move on from your able-bodied life, but that is not actually true.

 

Doctors should actually tell you that living with a spinal cord injury is a lifelong grieving process, such as losing a loved one. You never fully get over the loss of your previous able-bodied life and body, but you figure out a way to live with the loss.

 

## **20 Year Mark**

 

And lastly, many doctors don't understand why, but many begin to experience a lot of health problems after being paralyzed at the 20-year mark post-injury. There are a lot of unanswered questions about the long-term health of people with spinal cord injuries. Dr. J Glen House, a spinal cord injury doctor and paraplegic is doing research into the health of those with paralysis and if the ketogenic diet can help maintain people's health as they age with paralysis. He also believes the diet can help lessen chronic pain.

 

Remember, living with a spinal cord injury above anything else takes tenacity, stubbornness, and grit; another thing your doctor will likely not mention. Find that within you, and you can stay healthy for decades to come.

**Topics:** Spinal Cord Injury, paralyzed, mental health, rehabilitation, Contraction Risk, Heart Health, Bone Health, 20 Year Mark, Contractions, surgery, Sitting disease, cardio, physical therapists, Dexascan, osteoporosis, C5-6 quadriplegia, psychologist

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### Spinal Cord Injury

- [Types of Spinal Cord Injuries](https://www.spinalcord.com/types-of-spinal-cord-injuries)
- [Secondary Complications](https://www.spinalcord.com/secondary-complications-after-sci-spinal-cord-injury)
- [Causes](https://www.spinalcord.com/signs-symptoms-of-spinal-cord-injuries)
- [Symptoms](https://www.spinalcord.com/types-of-spinal-cord-injuries)
- [Prognosis](https://www.spinalcord.com/prognosis-of-spinal-cord-injuries)
- [Legal Help](https://www.spinalcord.com/spinal-cord-injury-legal-help-get-a-lawyer)

### Brain Injury

- [Types of Brain Injuries](https://www.spinalcord.com/types-of-traumatic-brain-injury)
- [Causes](https://www.spinalcord.com/causes-of-traumatic-and-acquired-brain-injuries)
- [Symptoms](https://www.spinalcord.com/traumatic-brain-injury-tbi-symptoms)
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- [Types of Personal Injury Claims](https://www.spinalcord.com/types-of-personal-injury-claims)
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{
  "@context" : "http://schema.org",
  "@type" : "Article",
  "articleBody" : "The spinal cord is a vital part of the human body. As the vehicle responsible for carrying messages from the brain to the rest of the body and back again, even the smallest interference can be detrimental. Following a traumatic <A href=\"/spinal-cord-injury\" rel=\"noopener\" target=\"_blank\"><SPAN style=\"font-weight: 400;\">spinal cord injury</SPAN></A>, this bundle of nerves can become bruised, also known as <A href=\"//www.spinalcord.com/blog/contusion-vs.-concussion-understanding-the-difference\">a contusion.</A> Because of the nature of the nervous system, any interference can constitute a serious spinal contusion, but these facts will help you dissect all of the information from the medical professionals.</P>\n\n<H2><STRONG>What Is a Spinal Contusion?</STRONG></H2>\n<IMG src=\"https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=300&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg\" alt=\"Signs-of-a-spinal-contusion-title-image\" width=\"300\" style=\"width: 300px; float: right; margin: 0px 0px 10px 10px;\" srcset=\"https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=150&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 150w, https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=300&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 300w, https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=450&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 450w, https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=600&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 600w, https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=750&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 750w, https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=900&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 900w\" sizes=\"(max-width: 300px) 100vw, 300px\"/>\n<P>Much like any other bruise, a contusion can cause bleeding from local blood vessels and inflammation which, rather<I><SPAN style=\"font-weight: 400;\"> unlike</SPAN></I> bruises on other parts of the body, can have serious negative impacts on the spinal cord itself. Because the<A href=\"/blog/contusion-vs.-concussion-understanding-the-difference\" rel=\"noopener\" target=\"_blank\"> “blood must clot to stop the bleeding”</A>a bruise results from contusions also increase cardiovascular risks.</P>\n<P>For example, the swelling a contusion can cause will often disrupt nerve impulses that travel from the brain to the body through the spinal cord, and the severity of this will depend upon the level of injury. Unlike a concussion, a contusion would not cause unconsciousness or a ‘blackout’, but instead cause the patient to feel a numbness or tingling in the extremities.</P>\n<P>A contusion can cause spinal compression, which happens when there is pressure on the spinal cord. This can go on to cause an array of <A href=\"http://www.hopkinsmedicine.org/healthlibrary/conditions/nervous_system_disorders/spinal_cord_compression_134,13/\" rel=\"noopener\" target=\"_blank\">physical symptoms</A> such as loss of sensation in the feet, inability to use the hands and loss of sexual ability. It must be noted that not all contusions cause spinal compression, and not all spinal compression is caused by a contusion, although they do often connect this way.</P>\n<H2><STRONG>Warning Signs of a Serious Spinal Contusion to Watch For</STRONG></H2>\n<P>Firstly, doctors will try and establish what area or limb the injury has affected. Spinal contusions most often “affect the upper extremities bilaterally and also sometimes involve the lower extremities,” <A href=\"http://www.healio.com/orthopedics/journals/ortho/2012-1-35-1/%7B7b1ed5f6-d6ca-435e-b69a-dba8a6d7c3c0%7D/spinal-cord-contusions\" rel=\"noopener\" target=\"_blank\">according to Dr. Wong</A>, an orthopedic physician.</P>\n<P>Symptoms include “numbness, tingling, [or] electric shock-like sensations and burning in the extremities,” <A href=\"http://www.aans.org/patient%20information/conditions%20and%20treatments/spinal%20cord%20injury.aspx\">(American Association of Neurological Surgeons, 2016)</A>. Generally falling into the category of “spinal trauma” there are many symptoms which are similar to other forms of spinal trauma and spinal cord injury. Below are some symptoms of spinal trauma:</P>\n<UL>\n<LI>Spinal shock — or the &quot;loss of feeling or movement below site of injury&quot; <A href=\"http://www.columbianeurosurgery.org/conditions/spinal-trauma/\" rel=\"noopener\" target=\"_blank\"><I>(Columbia University Medical Centre, 2016) </I></A>that can last between hours and weeks</LI>\n<LI>Loss of bladder or bowel function</LI>\n<LI>Difficulty breathing</LI>\n<LI>Muscle spasticity</LI>\n<LI>Difficulty understanding speech</LI>\n<LI>Problems with attention</LI>\n<LI>Memory challenges</LI>\n<LI>Heart rate and blood pressure problems</LI>\n</UL>\n<P>Unfortunately, it is sometimes challenging to identify which symptoms are due to a spinal contusion, and which ones are the result of a spinal cord injury directly. It can sometimes require a few days or weeks for the body to recover from spinal trauma and reveal if any permanent damage is left from the accident that caused the SCI.</P>\n<P>Understanding what a contusion is, and how it can come into play following a spinal cord injury is important in order to clearly appreciate your injury, understand your diagnoses, and work toward treatment and a prognosis. Doctors can sometimes use jargon that’s difficult to understand, so the more you can educate yourself about your condition, the more control you can have in your recovery and treatment.</P>\n<P>If you still have questions about the details of the spinal cord and how it may be affected from your injury, please contact us or download our <A href=\"/the-simplified-guide-to-understanding-a-spinal-cord-injury\" rel=\"noopener\" target=\"_blank\">guide to understanding a spinal cord injury</A>.",
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"description":"The spinal cord is a vital part of the human body. As the vehicle responsible for carrying messages from the brain to the rest of the body and back again, even the smallest interference can be detrimental. Following a traumatic spinal cord injury, this bundle of nerves can become bruised, also known as a contusion. Because of the nature of the nervous system, any interference can constitute a serious spinal contusion, but these facts will help you dissect all of the information from the medical professionals.

What Is a Spinal Contusion?
Signs-of-a-spinal-contusion-title-image
Much like any other bruise, a contusion can cause bleeding from local blood vessels and inflammation which, rather unlike bruises on other parts of the body, can have serious negative impacts on the spinal cord itself. Because the “blood must clot to stop the bleeding”a bruise results from contusions also increase cardiovascular risks.

For example, the swelling a contusion can cause will often disrupt nerve impulses that travel from the brain to the body through the spinal cord, and the severity of this will depend upon the level of injury. Unlike a concussion, a contusion would not cause unconsciousness or a ‘blackout’, but instead cause the patient to feel a numbness or tingling in the extremities.

A contusion can cause spinal compression, which happens when there is pressure on the spinal cord. This can go on to cause an array of physical symptoms such as loss of sensation in the feet, inability to use the hands and loss of sexual ability. It must be noted that not all contusions cause spinal compression, and not all spinal compression is caused by a contusion, although they do often connect this way.

Warning Signs of a Serious Spinal Contusion to Watch For
Firstly, doctors will try and establish what area or limb the injury has affected. Spinal contusions most often “affect the upper extremities bilaterally and also sometimes involve the lower extremities,” according to Dr. Wong, an orthopedic physician.

Symptoms include “numbness, tingling, [or] electric shock-like sensations and burning in the extremities,” (American Association of Neurological Surgeons, 2016). Generally falling into the category of “spinal trauma” there are many symptoms which are similar to other forms of spinal trauma and spinal cord injury. Below are some symptoms of spinal trauma:

Spinal shock — or the loss of feeling or movement below site of injury (Columbia University Medical Centre, 2016) that can last between hours and weeks
Loss of bladder or bowel function
Difficulty breathing
Muscle spasticity
Difficulty understanding speech
Problems with attention
Memory challenges
Heart rate and blood pressure problems
Unfortunately, it is sometimes challenging to identify which symptoms are due to a spinal contusion, and which ones are the result of a spinal cord injury directly. It can sometimes require a few days or weeks for the body to recover from spinal trauma and reveal if any permanent damage is left from the accident that caused the SCI.

Understanding what a contusion is, and how it can come into play following a spinal cord injury is important in order to clearly appreciate your injury, understand your diagnoses, and work toward treatment and a prognosis. Doctors can sometimes use jargon that’s difficult to understand, so the more you can educate yourself about your condition, the more control you can have in your recovery and treatment.

If you still have questions about the details of the spinal cord and how it may be affected from your injury, please contact us or download our guide to understanding a spinal cord injury.",
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