---
title: How to Manage When the Medicaid Cuts Come
description: There are a lot of things people with a spinal cord injury worry about when their Medicaid is suddenly changed in any way. It could be suddenly more expensive, or they could be deemed “not disabled enough.” What does a person with an SCI do when their healthcare changes or is on the line?
image: https://www.spinalcord.com/hubfs/Stock%20images/Multicolored%20pointillist%20abstract%20of%20passageway%20with%20neon%20lights%20and%20moving%20walkway%20on%20approach%20to%20concourses%20at%20a%20large%20metropolitan%20airport.jpeg
---

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# How to Manage When the Medicaid Cuts Come

 Author: [Tiffiny Carlson](https://www.spinalcord.com/meet-our-authors)

 Publish Date: July 20, 2018

There are a lot of things people with a [spinal cord injury](https://www.spinalcord.com/spinal-cord-injury) worry about when their Medicaid is suddenly changed in any way. It could be suddenly more expensive, with the co-pays out of control. Or they could be deemed “not disabled enough.” And worse, this is a trend we’re seeing across the country. What’s a person with an SCI to do when they live in a state that’s [greatly limiting their coverage](https://www.spinalcord.com/blog/topic/medicaid) or eligibility status?

## It’s time to get creative; that’s what.

Life is all about out-of-the-box workarounds and the solutions we’ve seen from people with SCI can’t be beat, even in the world of health insurance. One of the smartest workarounds we’ve seen is from [Jenny Weast, a C5 quadriplegic from California](https://www.spinalcord.com/blog/jenny-weast-quadriplegic-teacher-penalized-for-being-successful), who had her Medicaid cut two years ago due to an increasing salary at work. She refused to quit her job as a high school teacher, and as a result, she priced out of even California’s Medicaid Buy-In program.

### Fundraising

Her level of injury makes her fully dependent on [PCA's ](https://www.spinalcord.com/blog/how-to-hire-an-amazing-team-of-caregivers)morning and night in order to get ready for work and to get in and out of bed. Without them, she cannot do her job or live alone in her home. Instead of looking to her family to help her with [caregiving ](https://www.spinalcord.com/blog/how-to-hire-an-amazing-team-of-caregivers)after her Medicaid was cut, the community at her school helped fundraise money for her caregivers, which paid for them for the entirety of last year. But even Jenny knows this generosity can’t last year after year and worries she won’t be able to raise the $50,000 needed each year to pay for them.

If you can swing a fundraiser like Jenny, definitely do so. Unfortunately, not everybody has access to such a generous [community](https://www.spinalcord.com/spinal-cord-injury-community), and also this isn’t the most permanent solution. Even Jenny says she should talk to a special needs trust lawyer, which is something you should do as well when you find yourself in a similar situation. Special needs trust lawyers are adept at coming up with creative solutions to allow you to both [keep your healthcare and work](https://www.spinalcord.com/blog/topic/medicaid/), which many quads want to do.

### Trading Room & Board for Caregiver Services

Another option is to pay for your caregivers by allowing them to live in your home for free; a type of [room and board/trading-for-work](https://www.spinalcord.com/blog/trading-home-health-aide-services-for-room-board) situation. While this isn't the most ideal since not everybody wants to share their home with their caregivers, it is an option that many people actually do. You can also search for candidates who are in nursing programs to be your live-in caregiver. Nursing students make great roommates.

And the loss of caregivers isn't the only worry that comes into play when a person with a spinal cord injury suddenly loses their Medicaid coverage. Many people have to put their wheelchair repairs on hold, as well as repairs of other medical equipment. Nobody will want to fix your wheelchair if you do not have the proper health insurance, and this can be highly problematic when your wheelchair suddenly breaks.

To be safe, always have a credit card on hand if you find yourself in a no-insurance situation when it comes to wheelchair repairs. This can be one of the scariest aspects of not having Medicaid. Our wheelchairs are our legs. Without them, we’re even more disabled.

*How have you had to get creative after your Medicaid coverage was cut? *Let us know in the comments below; we'd love to see some more ideas!

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**Topics:** Medicaid

### Stay Updated on Advancements On Traumatic Brain & Spinal Cord Injuries

About the Author

#### Tiffiny Carlson

 Since 1998, Tiffiny Carlson has been a prolific commentator on all things SCI in a number of prominent magazines, blogs and websites. Hailing from Minnesota, she was the SCI Columnist for New Mobility Magazine for 13 years and she currently works as the Executive Director of SPINALpedia, one of the leading websites for people with SCI to share videos and stories. She has been a C5-6 quadriplegic since a diving accident 24 years ago. Tiffiny has also been a fierce advocate for SCI research. In 2016, the Morton Paralysis Fund honored her for her work. While all SCI topics interest her, dating, love and the business of relationships have always been where her passion lies the most. 

[Learn More About the Author](https://www.spinalcord.com/meet-our-authors)

**Leave a Comment**

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true

### Spinal Cord Injury

- [Types of Spinal Cord Injuries](https://www.spinalcord.com/types-of-spinal-cord-injuries)
- [Secondary Complications](https://www.spinalcord.com/secondary-complications-after-sci-spinal-cord-injury)
- [Causes](https://www.spinalcord.com/signs-symptoms-of-spinal-cord-injuries)
- [Symptoms](https://www.spinalcord.com/types-of-spinal-cord-injuries)
- [Prognosis](https://www.spinalcord.com/prognosis-of-spinal-cord-injuries)
- [Legal Help](https://www.spinalcord.com/spinal-cord-injury-legal-help-get-a-lawyer)

### Brain Injury

- [Types of Brain Injuries](https://www.spinalcord.com/types-of-traumatic-brain-injury)
- [Causes](https://www.spinalcord.com/causes-of-traumatic-and-acquired-brain-injuries)
- [Symptoms](https://www.spinalcord.com/traumatic-brain-injury-tbi-symptoms)
- [Prognosis](https://www.spinalcord.com/brain-injury-prognosis-for-tbi-abi)
- [Legal Help](https://www.spinalcord.com/brain-injury-legal-help-get-a-lawyer)

### Finding Treatment

- [Physician Directory](https://www.spinalcord.com/brain-and-spinal-cord-injury-physician-directory)
- [Rehabilitation Directory](https://www.spinalcord.com/spinal-cord-injury-hospitals-rehabilitation-directory)
- [Technology Advancements](https://www.spinalcord.com/sci-technology-advancements)
- [Prevention](https://www.spinalcord.com/spinal-cord-injury-prevention)

### Legal Options

- [Spinal Cord Injury Lawyer](https://www.spinalcord.com/spinal-cord-injury-lawyer)
- [Brain Injury Lawyer](https://www.spinalcord.com/brain-injury-lawyer)
- [Types of Personal Injury Claims](https://www.spinalcord.com/types-of-personal-injury-claims)
- [Where To Start](https://www.spinalcord.com/brain-spinal-cord-injury-lawyer-where-to-start)
- [Local Assistance](https://www.spinalcord.com/florida-personal-injury-claims)

#### [About Us](https://www.spinalcord.com/about-us)

Spinal cord injuries are traumatic for patients and their families. They cause disruptive changes to every aspect of your life and there is a lot of new information to navigate and understand. Our experts have collected everything in one place to help you learn more about your injury, locate doctors and treatment centers, find financial support, and get assistance navigating your next move.

[Learn More About SpinalCord.com →](https://www.spinalcord.com/about-us)

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{
  "@context" : "http://schema.org",
  "@type" : "Article",
  "articleBody" : "The spinal cord is a vital part of the human body. As the vehicle responsible for carrying messages from the brain to the rest of the body and back again, even the smallest interference can be detrimental. Following a traumatic <A href=\"/spinal-cord-injury\" rel=\"noopener\" target=\"_blank\"><SPAN style=\"font-weight: 400;\">spinal cord injury</SPAN></A>, this bundle of nerves can become bruised, also known as <A href=\"//www.spinalcord.com/blog/contusion-vs.-concussion-understanding-the-difference\">a contusion.</A> Because of the nature of the nervous system, any interference can constitute a serious spinal contusion, but these facts will help you dissect all of the information from the medical professionals.</P>\n\n<H2><STRONG>What Is a Spinal Contusion?</STRONG></H2>\n<IMG src=\"https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=300&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg\" alt=\"Signs-of-a-spinal-contusion-title-image\" width=\"300\" style=\"width: 300px; float: right; margin: 0px 0px 10px 10px;\" srcset=\"https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=150&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 150w, https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=300&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 300w, https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=450&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 450w, https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=600&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 600w, https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=750&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 750w, https://www.spinalcord.com/hs-fs/hubfs/Blog-Images/Signs-of-a-spinal-contusion-title-image-min.jpg?width=900&amp;name=Signs-of-a-spinal-contusion-title-image-min.jpg 900w\" sizes=\"(max-width: 300px) 100vw, 300px\"/>\n<P>Much like any other bruise, a contusion can cause bleeding from local blood vessels and inflammation which, rather<I><SPAN style=\"font-weight: 400;\"> unlike</SPAN></I> bruises on other parts of the body, can have serious negative impacts on the spinal cord itself. Because the<A href=\"/blog/contusion-vs.-concussion-understanding-the-difference\" rel=\"noopener\" target=\"_blank\"> “blood must clot to stop the bleeding”</A>a bruise results from contusions also increase cardiovascular risks.</P>\n<P>For example, the swelling a contusion can cause will often disrupt nerve impulses that travel from the brain to the body through the spinal cord, and the severity of this will depend upon the level of injury. Unlike a concussion, a contusion would not cause unconsciousness or a ‘blackout’, but instead cause the patient to feel a numbness or tingling in the extremities.</P>\n<P>A contusion can cause spinal compression, which happens when there is pressure on the spinal cord. This can go on to cause an array of <A href=\"http://www.hopkinsmedicine.org/healthlibrary/conditions/nervous_system_disorders/spinal_cord_compression_134,13/\" rel=\"noopener\" target=\"_blank\">physical symptoms</A> such as loss of sensation in the feet, inability to use the hands and loss of sexual ability. It must be noted that not all contusions cause spinal compression, and not all spinal compression is caused by a contusion, although they do often connect this way.</P>\n<H2><STRONG>Warning Signs of a Serious Spinal Contusion to Watch For</STRONG></H2>\n<P>Firstly, doctors will try and establish what area or limb the injury has affected. Spinal contusions most often “affect the upper extremities bilaterally and also sometimes involve the lower extremities,” <A href=\"http://www.healio.com/orthopedics/journals/ortho/2012-1-35-1/%7B7b1ed5f6-d6ca-435e-b69a-dba8a6d7c3c0%7D/spinal-cord-contusions\" rel=\"noopener\" target=\"_blank\">according to Dr. Wong</A>, an orthopedic physician.</P>\n<P>Symptoms include “numbness, tingling, [or] electric shock-like sensations and burning in the extremities,” <A href=\"http://www.aans.org/patient%20information/conditions%20and%20treatments/spinal%20cord%20injury.aspx\">(American Association of Neurological Surgeons, 2016)</A>. Generally falling into the category of “spinal trauma” there are many symptoms which are similar to other forms of spinal trauma and spinal cord injury. Below are some symptoms of spinal trauma:</P>\n<UL>\n<LI>Spinal shock — or the &quot;loss of feeling or movement below site of injury&quot; <A href=\"http://www.columbianeurosurgery.org/conditions/spinal-trauma/\" rel=\"noopener\" target=\"_blank\"><I>(Columbia University Medical Centre, 2016) </I></A>that can last between hours and weeks</LI>\n<LI>Loss of bladder or bowel function</LI>\n<LI>Difficulty breathing</LI>\n<LI>Muscle spasticity</LI>\n<LI>Difficulty understanding speech</LI>\n<LI>Problems with attention</LI>\n<LI>Memory challenges</LI>\n<LI>Heart rate and blood pressure problems</LI>\n</UL>\n<P>Unfortunately, it is sometimes challenging to identify which symptoms are due to a spinal contusion, and which ones are the result of a spinal cord injury directly. It can sometimes require a few days or weeks for the body to recover from spinal trauma and reveal if any permanent damage is left from the accident that caused the SCI.</P>\n<P>Understanding what a contusion is, and how it can come into play following a spinal cord injury is important in order to clearly appreciate your injury, understand your diagnoses, and work toward treatment and a prognosis. Doctors can sometimes use jargon that’s difficult to understand, so the more you can educate yourself about your condition, the more control you can have in your recovery and treatment.</P>\n<P>If you still have questions about the details of the spinal cord and how it may be affected from your injury, please contact us or download our <A href=\"/the-simplified-guide-to-understanding-a-spinal-cord-injury\" rel=\"noopener\" target=\"_blank\">guide to understanding a spinal cord injury</A>.",
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"description":"The spinal cord is a vital part of the human body. As the vehicle responsible for carrying messages from the brain to the rest of the body and back again, even the smallest interference can be detrimental. Following a traumatic spinal cord injury, this bundle of nerves can become bruised, also known as a contusion. Because of the nature of the nervous system, any interference can constitute a serious spinal contusion, but these facts will help you dissect all of the information from the medical professionals.

What Is a Spinal Contusion?
Signs-of-a-spinal-contusion-title-image
Much like any other bruise, a contusion can cause bleeding from local blood vessels and inflammation which, rather unlike bruises on other parts of the body, can have serious negative impacts on the spinal cord itself. Because the “blood must clot to stop the bleeding”a bruise results from contusions also increase cardiovascular risks.

For example, the swelling a contusion can cause will often disrupt nerve impulses that travel from the brain to the body through the spinal cord, and the severity of this will depend upon the level of injury. Unlike a concussion, a contusion would not cause unconsciousness or a ‘blackout’, but instead cause the patient to feel a numbness or tingling in the extremities.

A contusion can cause spinal compression, which happens when there is pressure on the spinal cord. This can go on to cause an array of physical symptoms such as loss of sensation in the feet, inability to use the hands and loss of sexual ability. It must be noted that not all contusions cause spinal compression, and not all spinal compression is caused by a contusion, although they do often connect this way.

Warning Signs of a Serious Spinal Contusion to Watch For
Firstly, doctors will try and establish what area or limb the injury has affected. Spinal contusions most often “affect the upper extremities bilaterally and also sometimes involve the lower extremities,” according to Dr. Wong, an orthopedic physician.

Symptoms include “numbness, tingling, [or] electric shock-like sensations and burning in the extremities,” (American Association of Neurological Surgeons, 2016). Generally falling into the category of “spinal trauma” there are many symptoms which are similar to other forms of spinal trauma and spinal cord injury. Below are some symptoms of spinal trauma:

Spinal shock — or the loss of feeling or movement below site of injury (Columbia University Medical Centre, 2016) that can last between hours and weeks
Loss of bladder or bowel function
Difficulty breathing
Muscle spasticity
Difficulty understanding speech
Problems with attention
Memory challenges
Heart rate and blood pressure problems
Unfortunately, it is sometimes challenging to identify which symptoms are due to a spinal contusion, and which ones are the result of a spinal cord injury directly. It can sometimes require a few days or weeks for the body to recover from spinal trauma and reveal if any permanent damage is left from the accident that caused the SCI.

Understanding what a contusion is, and how it can come into play following a spinal cord injury is important in order to clearly appreciate your injury, understand your diagnoses, and work toward treatment and a prognosis. Doctors can sometimes use jargon that’s difficult to understand, so the more you can educate yourself about your condition, the more control you can have in your recovery and treatment.

If you still have questions about the details of the spinal cord and how it may be affected from your injury, please contact us or download our guide to understanding a spinal cord injury.",
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